Welcome to the PIGA-CDG.com site! Our son, Emmett, was diagnosed with PIGA-CDG when he was nine months old, back in January 2017. He sadly passed in February 2020. My husband and I started this website because we remember how lost we were when we first got the diagnosis, and how much finding the CDG community and other PIGA family members helped provide the support we needed.
We documented much of Emmett’s journey on a personal blog (www.lifebyemmett.com), so you’re welcome to follow along with our family there. But if you have any questions or comments, please feel free to contact me directly using the form below. Hope to hear from you.
-Ann